Life After...
Stories of resilience, courage, and possibility
Behind every "Life After..." story is a parent, grandparent, guardian, or caregiver whose unwavering love, sacrifice, and advocacy helped make this journey possible. This page honors both the story and the heroes who helped write it.
Jacah J'Don Jefferson
"Life After Shaken Baby Syndrome"
On September 23rd 2006 a healthy 6lb 2oz, 19 inch baby boy blessed this earth with his presence. His name is Jacah J'Don Jefferson. After 5 short months of life Jacah was brutally abused by his biological mother's boyfriend. Doctors diagnosed him with Shaken Baby Syndrome, also called Abusive Head Trauma, which means a serious brain injury resulting from forcefully shaking an infant or toddler. His injuries were so severe that doctors believed he would be blind, need a trachea or may not even survive. After being discharged to a relative that gave him back to CPS, two foster homes where he endured more abuse, God blessed his maternal grandparents with custody. After two years his entire biological family faded away but he continued to reside with his Step-Grandmother whom he calls "mama", the only dad he knows Dexter, and his uncle Jeffrey and Earnest. Due to his injury Jacah suffers from Cerebral Palsy's, Seizure Disorder, development delays, and vision impairment. With all that he continues to endure. Jacah lives his life after Shaken Baby Syndrome to the fullest. He is a lover of music, traveling (especially by cruise ship), and continues to be the center of attention to his family. Jacah is known for his million-dollar smile and wardrobe (especially his tennis shoes). In 2015 Jacah won the hearts of many across the nation with his #TeamJacah movement in a quest to purchase a wheelchair accessible van. He is the inspiration of this nonprofit organization; Love Has No Disability Inc. What we would like for you to know about Jacah, is that his life and the love he brings into our lives is a true example of the love Jesus showed on the cross. No matter what pain he feels, or what obstacles he may face, Jacah does it with a smile, and that's proof that there is truly "Life After Shaken Baby Syndrome"!
"Life After Shaken Baby Syndrome"
On September 23rd 2006 a healthy 6lb 2oz, 19 inch baby boy blessed this earth with his presence. His name is Jacah J'Don Jefferson. After 5 short months of life Jacah was brutally abused by his biological mother's boyfriend. Doctors diagnosed him with Shaken Baby Syndrome, also called Abusive Head Trauma, which means a serious brain injury resulting from forcefully shaking an infant or toddler. His injuries were so severe that doctors believed he would be blind, need a trachea or may not even survive. After being discharged to a relative that gave him back to CPS, two foster homes where he endured more abuse, God blessed his maternal grandparents with custody. After two years his entire biological family faded away but he continued to reside with his Step-Grandmother whom he calls "mama", the only dad he knows Dexter, and his uncle Jeffrey and Earnest. Due to his injury Jacah suffers from Cerebral Palsy's, Seizure Disorder, development delays, and vision impairment. With all that he continues to endure. Jacah lives his life after Shaken Baby Syndrome to the fullest. He is a lover of music, traveling (especially by cruise ship), and continues to be the center of attention to his family. Jacah is known for his million-dollar smile and wardrobe (especially his tennis shoes). In 2015 Jacah won the hearts of many across the nation with his #TeamJacah movement in a quest to purchase a wheelchair accessible van. He is the inspiration of this nonprofit organization; Love Has No Disability Inc. What we would like for you to know about Jacah, is that his life and the love he brings into our lives is a true example of the love Jesus showed on the cross. No matter what pain he feels, or what obstacles he may face, Jacah does it with a smile, and that's proof that there is truly "Life After Shaken Baby Syndrome"!
Rebekah Jones
"Life After Chronic Encephalopathy"
Rebekah is a 17 year old high school senior. She enjoys socializing, swimming, traveling, spending time with her family, and of course, boys. Rebekah lives with Schizencephaly, Chronic Encephalopathy, Epilepsy, Ineffective Airway Clearance, Severe Cognitive Motor impairment (due to a intrauterine stroke), and Optic-atrophy (due to an anomaly within the chromosomes). Her condition renders her non-verbal and wheelchair bound.
Despite her lengthy diagnosis, Rebekah starts everyday with a smile, and has found ways to communicate her gratitude, and typical teenage attitude.
She exemplifies perseverance, appreciation, and genuine enjoyment for life.
"Life After Chronic Encephalopathy"
Rebekah is a 17 year old high school senior. She enjoys socializing, swimming, traveling, spending time with her family, and of course, boys. Rebekah lives with Schizencephaly, Chronic Encephalopathy, Epilepsy, Ineffective Airway Clearance, Severe Cognitive Motor impairment (due to a intrauterine stroke), and Optic-atrophy (due to an anomaly within the chromosomes). Her condition renders her non-verbal and wheelchair bound.
Despite her lengthy diagnosis, Rebekah starts everyday with a smile, and has found ways to communicate her gratitude, and typical teenage attitude.
She exemplifies perseverance, appreciation, and genuine enjoyment for life.
Cameron Williams
"Life After Spinal Muscular Atrophy"
"Life After Spinal Muscular Atrophy"
Cameron J. “Cam” Williams was born on May 22nd, 2012, as a healthy 9lb 2oz baby boy. He has been diagnosed with a disability called Spinal Muscular Atrophy (SMA). SMA a disability that causes low muscle tone in infants and adults causing some to not be able to move, sit up, stand, walk or breathe on their own. Cameron was diagnosed at 5 months old on October 31, 2012. There are four different types of SMA. Cameron has Type 1. This type has been said to be the worst type of the four, which is determined by the age of onset leaving infants with a life expectancy of 2 years. Type 1’s are diagnosed between the ages of 0 to 6 months. Cameron is now 4 years old, surpassing the life expectancy age and doing far beyond where doctors thought he would be at his age. Cameron loves watching TV and playing just as a typical 4-year-old child. He has an older brother named Tre, who he loves laughing and playing with. Even though Cameron can't move much, he has a very bright personality and can communicate through facial expressions and some words. There is no cure for this disability but, just recently we got news that a drug for his disability was FDA approved. It was brought through many trials over the years and finally it met the requirements of the FDA to be given to children with SMA. This drug is said to help improve the motor skills in SMA children. Cameron will be going in for his evaluation for his first injection this month.
Lilliana Mercado
"Life After Quadriplegic Cerebral Palsy"
Lilliana Mercado was born March 19, 2009. She was born a bit early and had a little heart murmur. At her 2 months checkup, her pediatrician noticed her head wasn't growing as it should and recommended some test be done. I decided to get a second opinion and was told we should monitor her development as well as order an MRI. As months past we noticed she was not reaching certain milestones, the MRI also showed that her brain had not fully developed and that she would suffer moderate delays. When she was 3, she was diagnosed with Quadriplegic Cerebral Palsy. We call Lilliana, “Lilly” and she is absolutely the light of our family. Everyone she comes across adores her, especially her strength and determination. Lilly is truly an inspiration to me. She loves her brothers, sisters, cousins, animals, babies, basketball and enjoys watching many movies and kids shows. Lilly amazes us every day!
"Life After Quadriplegic Cerebral Palsy"
Lilliana Mercado was born March 19, 2009. She was born a bit early and had a little heart murmur. At her 2 months checkup, her pediatrician noticed her head wasn't growing as it should and recommended some test be done. I decided to get a second opinion and was told we should monitor her development as well as order an MRI. As months past we noticed she was not reaching certain milestones, the MRI also showed that her brain had not fully developed and that she would suffer moderate delays. When she was 3, she was diagnosed with Quadriplegic Cerebral Palsy. We call Lilliana, “Lilly” and she is absolutely the light of our family. Everyone she comes across adores her, especially her strength and determination. Lilly is truly an inspiration to me. She loves her brothers, sisters, cousins, animals, babies, basketball and enjoys watching many movies and kids shows. Lilly amazes us every day!
Parrish Jerome Ford II
"Life After Autism"
was born April 10th, 2008. He was a very easy baby to take care of. He liked to stay up late, and he liked to eat. (Still does) As Parrish began to age, we noticed that he was not meeting the milestones like most kids his age. He wasn’t walking, talking, or communicating, so his doctor recommended that we have him evaluated because she believed he could be autistic. We had Parrish evaluated and he was diagnosed with autism and a speech impairment at 2 years, 10 months. We had him evaluated by 3 different people, a pediatrician, a child development specialist, and an LSSP with the Pasadena Independent School District. They all came back with the same diagnosis, autism with a speech impairment. However, they had different degrees of severity and where they would place him on the spectrum. Some thought he was moderately autistic, and others thought that he was more severe. This would soon be proven because the older Parrish got, the more intense was his behavior. At the age of six, he was still showing signs of being developmentally delayed, so he was recommended for evaluation. This time he was diagnosed with an intellectual disability. This was devastating to our family. We were already trying to process the fact that our son had a life-altering, life-long disability, but now he had a second disability that would affect the way he functions. We had so many plans for our boy, but we had to buckle down and do the research and figure out how to get the support that Parrish needed. Parrish ended up needing lots of therapy and had countless doctor’s appointments that followed. Parrish is now 16 years old, he’s in the 11th grade and he is thriving. I couldn’t imagine him being any other way besides how he is. He has come a long way and has taught his dad and I so much over the years. He is such an outstanding boy. He loves music, basketball, baseball, dinosaurs, swimming, going to the beach, and spending time with his family. Parrish is also an amazing singer; he can match any tune with perfect pitch. We can listen to him sing all day! He has a very good memory and is a fantastic helper. You can show him how to do something once, and he will remember it always. Parrish has never participated in a banquet or a gala of any kind. I was apprehensive at first, now I feel like this is the perfect opportunity to showcase our Parrish. We are delighted to be given this opportunity to introduce Parrish to others in a formal way. He is so much more than his disability and he means everything to his family.
"Life After Autism"
was born April 10th, 2008. He was a very easy baby to take care of. He liked to stay up late, and he liked to eat. (Still does) As Parrish began to age, we noticed that he was not meeting the milestones like most kids his age. He wasn’t walking, talking, or communicating, so his doctor recommended that we have him evaluated because she believed he could be autistic. We had Parrish evaluated and he was diagnosed with autism and a speech impairment at 2 years, 10 months. We had him evaluated by 3 different people, a pediatrician, a child development specialist, and an LSSP with the Pasadena Independent School District. They all came back with the same diagnosis, autism with a speech impairment. However, they had different degrees of severity and where they would place him on the spectrum. Some thought he was moderately autistic, and others thought that he was more severe. This would soon be proven because the older Parrish got, the more intense was his behavior. At the age of six, he was still showing signs of being developmentally delayed, so he was recommended for evaluation. This time he was diagnosed with an intellectual disability. This was devastating to our family. We were already trying to process the fact that our son had a life-altering, life-long disability, but now he had a second disability that would affect the way he functions. We had so many plans for our boy, but we had to buckle down and do the research and figure out how to get the support that Parrish needed. Parrish ended up needing lots of therapy and had countless doctor’s appointments that followed. Parrish is now 16 years old, he’s in the 11th grade and he is thriving. I couldn’t imagine him being any other way besides how he is. He has come a long way and has taught his dad and I so much over the years. He is such an outstanding boy. He loves music, basketball, baseball, dinosaurs, swimming, going to the beach, and spending time with his family. Parrish is also an amazing singer; he can match any tune with perfect pitch. We can listen to him sing all day! He has a very good memory and is a fantastic helper. You can show him how to do something once, and he will remember it always. Parrish has never participated in a banquet or a gala of any kind. I was apprehensive at first, now I feel like this is the perfect opportunity to showcase our Parrish. We are delighted to be given this opportunity to introduce Parrish to others in a formal way. He is so much more than his disability and he means everything to his family.
Caliph Jude Newton
"Life After DiGeorge Syndrome and Multiple Congenital Anomalies"
Caliph Jude Newton (pronounced Ca-leaf) but we mostly call him CJ
6 years old
Caliph was born with multiple congenital anomalies including tibia hemimelia, femoral bifurcation, four fused toes, and club foot all on the right leg. He also had coarctation of his aorta. At seven months he had his right leg above knee amputated. Due to his amputation Caliph wears a prosthetic leg with a knee hinge. This allows him to walk and have the sensation of bending his knee. He is blessed to be able to have two prosthetic legs, one for walking and the other for running.
At two years old he was diagnosed with acute hypertension. Caliph takes medication to control his acute hypertension.
Caliph was also diagnosesd with DiGeorge Syndrome at two years old as well. DiGeorge Syndrome affects Caliph differently from most kids. The reason is because he has variants of the syndrome, where as most kids, have the full syndrome. DiGeorge Syndrome affects Caliph's immune system, causing his memory B cells in his body to lose memory after about six months of the vaccinations he has received. He also develops cellulitis on his skin due to DiGeorge Syndrome, which causes him to have to take antibiotics. Since DiGeorge Syndrome affects his immune system, he also takes prophylactic antiobiotic three times a week to help prevent any infections. His DiGeorge Syndrome affects his speech due to his submucosal cleft palate, in which he takes speech therapy.
He was also diagnosed with migraine syndrome at age five.
We have been told that Caliph is a medical mystery. He has so many issues medically but they cannot pin point exactly what is the root cause. We have also been told that as he gets older he may experience more congenital anomalies. Until then we will continue to enjoy the journey we are on. Caliph sees at least thirteen doctors throughout the year for his multiple anomalies.
Caliph loves going to the movies. He loves playing with his cousins. He loves going to the park. He loves watching his tablet. He loves learning how to play sports such as: basketball and tee-ball. He loves going to the fire station and meeting the local fireman. He loves firetrucks. He is fascinated with dinosaurs. He can name them as well as let you know if they are a carnivore, omnivore, or herbivore. He loves taking pictures. He loves learning how to speak Spanish in his kindergarten class. Lastly, he loves different types of music. He loves doing the cupid shuffle.
The one thing I want you to know about Caliph is that he is my miracle baby. Caliph is so smart and very affectionate. He is friendly and loves being with his family. He has had a total of 8 surgeries in the 6 years he has been on this earth. Even through all that we go through, he continues to keep a smile on his face. He is my little superhero. Caliph's smile can brighten any room. Caliph wants to be a FIREMAN and Superhero when he grows up.
Danielle Lewis
"Life After DiGeorge Syndrome and Multiple Congenital Anomalies"
Caliph Jude Newton (pronounced Ca-leaf) but we mostly call him CJ
6 years old
Caliph was born with multiple congenital anomalies including tibia hemimelia, femoral bifurcation, four fused toes, and club foot all on the right leg. He also had coarctation of his aorta. At seven months he had his right leg above knee amputated. Due to his amputation Caliph wears a prosthetic leg with a knee hinge. This allows him to walk and have the sensation of bending his knee. He is blessed to be able to have two prosthetic legs, one for walking and the other for running.
At two years old he was diagnosed with acute hypertension. Caliph takes medication to control his acute hypertension.
Caliph was also diagnosesd with DiGeorge Syndrome at two years old as well. DiGeorge Syndrome affects Caliph differently from most kids. The reason is because he has variants of the syndrome, where as most kids, have the full syndrome. DiGeorge Syndrome affects Caliph's immune system, causing his memory B cells in his body to lose memory after about six months of the vaccinations he has received. He also develops cellulitis on his skin due to DiGeorge Syndrome, which causes him to have to take antibiotics. Since DiGeorge Syndrome affects his immune system, he also takes prophylactic antiobiotic three times a week to help prevent any infections. His DiGeorge Syndrome affects his speech due to his submucosal cleft palate, in which he takes speech therapy.
He was also diagnosed with migraine syndrome at age five.
We have been told that Caliph is a medical mystery. He has so many issues medically but they cannot pin point exactly what is the root cause. We have also been told that as he gets older he may experience more congenital anomalies. Until then we will continue to enjoy the journey we are on. Caliph sees at least thirteen doctors throughout the year for his multiple anomalies.
Caliph loves going to the movies. He loves playing with his cousins. He loves going to the park. He loves watching his tablet. He loves learning how to play sports such as: basketball and tee-ball. He loves going to the fire station and meeting the local fireman. He loves firetrucks. He is fascinated with dinosaurs. He can name them as well as let you know if they are a carnivore, omnivore, or herbivore. He loves taking pictures. He loves learning how to speak Spanish in his kindergarten class. Lastly, he loves different types of music. He loves doing the cupid shuffle.
The one thing I want you to know about Caliph is that he is my miracle baby. Caliph is so smart and very affectionate. He is friendly and loves being with his family. He has had a total of 8 surgeries in the 6 years he has been on this earth. Even through all that we go through, he continues to keep a smile on his face. He is my little superhero. Caliph's smile can brighten any room. Caliph wants to be a FIREMAN and Superhero when he grows up.
Danielle Lewis
Kamiyah Jones
"Life After UGDH"
Hello, I am Kamiyah Jones, and I am 3 years old. I was born March 6, 2021, to my loving parents, 2 sisters and 3 brothers. After I was born, I had to stay 2 weeks in the NICU because I couldn’t go home for swallowing issues. When I come home everything was going well until I was 3 months old, and my mom took me to Kingwood emergency room where than transfer me to Texas Children the woodlands upon arriving to there they confirmed with an EEG I was having seizures, so they transfer me again to Texas Children main campus. After spending 2 weeks in the hospital, that’s when I received my first diagnosis of infantile spasms and floppy airway. The doctors then gave me an NG tube to eat and take my medication. I was misdiagnosed at 4 months with Zellweger. That is when I also stop using my voice to cry and make noise. From September 3,2021 –January 25, 2022, I spent 144 days (about 4 and a half months) in ICU due to having Rhinovirus. Upon arrival I immediately got intubated doing my stay my right lung colleges twice, I failed 3 extubation, my hair started to fall out, I found out my diagnosis, doctors tried to give up on me a few times, and trached. After all of this God still had his hands on me. I received my diagnose of development delay, dysautonomia, chronic respiratory failure, congenital disorders of glycosylation (CDG), Jamuar Syndrome (UGDH) and epilepsy. On December 28, 2021, I was trached and finally free from all tubes in my mouth. After coming home to my family after 4 and half long months I celebrated my 1st birthday surrounded with friends and family. My first 6 months home I would go visit the hospital a least once to twice a month. Now I am 2 year olds and is going strong and beating all odds. My mom started me a non-profit called “GeneticsRose” which our first event will be in March 2024 as we will be hosting a sneaker ball.
"Life After UGDH"
Hello, I am Kamiyah Jones, and I am 3 years old. I was born March 6, 2021, to my loving parents, 2 sisters and 3 brothers. After I was born, I had to stay 2 weeks in the NICU because I couldn’t go home for swallowing issues. When I come home everything was going well until I was 3 months old, and my mom took me to Kingwood emergency room where than transfer me to Texas Children the woodlands upon arriving to there they confirmed with an EEG I was having seizures, so they transfer me again to Texas Children main campus. After spending 2 weeks in the hospital, that’s when I received my first diagnosis of infantile spasms and floppy airway. The doctors then gave me an NG tube to eat and take my medication. I was misdiagnosed at 4 months with Zellweger. That is when I also stop using my voice to cry and make noise. From September 3,2021 –January 25, 2022, I spent 144 days (about 4 and a half months) in ICU due to having Rhinovirus. Upon arrival I immediately got intubated doing my stay my right lung colleges twice, I failed 3 extubation, my hair started to fall out, I found out my diagnosis, doctors tried to give up on me a few times, and trached. After all of this God still had his hands on me. I received my diagnose of development delay, dysautonomia, chronic respiratory failure, congenital disorders of glycosylation (CDG), Jamuar Syndrome (UGDH) and epilepsy. On December 28, 2021, I was trached and finally free from all tubes in my mouth. After coming home to my family after 4 and half long months I celebrated my 1st birthday surrounded with friends and family. My first 6 months home I would go visit the hospital a least once to twice a month. Now I am 2 year olds and is going strong and beating all odds. My mom started me a non-profit called “GeneticsRose” which our first event will be in March 2024 as we will be hosting a sneaker ball.
Cameron Michael Hilaire
"Life After Lennox-Gastaut Syndrome"
Cameron Michael Hilaire, born April 19, 2006 to two very athletic parents who knew a future All-Star was born. He was perfect; 10 fingers, 10 toes and a beautiful head of hair. At 6 weeks, he had what mom thought was his first seizure – little did she know, they started in the womb. A stroke in utero is what the doctors confirmed after an MRI. Second diagnosis, infantile spasms and as he got older, that upgraded to Lennox-Gastaut Syndrome which is a severe form of epilepsy that typically becomes apparent during infancy or early childhood. Affected children experience several different types of seizures throughout their lifetime - most commonly atonic, tonic and atypical absence seizures.
Doctors said he would never walk…but look at God. Knowing that his life would be faced with many hurdles, mom took them head on starting with early intervention therapies. At age 2, he was diagnosed with Autism and over time has received additional diagnoses of having an intellectual disability, an orthopedic impairment and being developmentally delayed.
Not falling far from the apple tree, Cameron’s love for sports was apparent early on. But two sports stood out the most - basketball and volleyball; both sports played by his parents. Once he started walking unassisted at age 2 ½, he always had a ball in his hands and on game days would stand in front of the tv with a ball on his hip watching with excitement. He enjoys spending time outdoors, playing with his younger brother and of course, watching sports because in Cam’s world, ball is life. Cameron continues to have daily seizures, is non-verbal and 100% dependent on assistance with all daily living activities.
All of us have times of stress, loss, failure or trauma in our lives. How we respond to these events has a big impact on our wellbeing. We often cannot choose what happens to us, but we can choose how we react to what happens. In practice it’s not always easy, but one of the most exciting findings is that resilience, like many other life skills, can be learned. As a family, we continue to have positive emotions – like joy, gratitude, contentment, inspiration and pride – and we don’t just feel good when we experience them. They also help us perform better, broaden our perception, and increase our resilience. So although we need to be realistic about life’s ups and downs, it helps to focus on the good aspects of any situation.
"Life After Lennox-Gastaut Syndrome"
Cameron Michael Hilaire, born April 19, 2006 to two very athletic parents who knew a future All-Star was born. He was perfect; 10 fingers, 10 toes and a beautiful head of hair. At 6 weeks, he had what mom thought was his first seizure – little did she know, they started in the womb. A stroke in utero is what the doctors confirmed after an MRI. Second diagnosis, infantile spasms and as he got older, that upgraded to Lennox-Gastaut Syndrome which is a severe form of epilepsy that typically becomes apparent during infancy or early childhood. Affected children experience several different types of seizures throughout their lifetime - most commonly atonic, tonic and atypical absence seizures.
Doctors said he would never walk…but look at God. Knowing that his life would be faced with many hurdles, mom took them head on starting with early intervention therapies. At age 2, he was diagnosed with Autism and over time has received additional diagnoses of having an intellectual disability, an orthopedic impairment and being developmentally delayed.
Not falling far from the apple tree, Cameron’s love for sports was apparent early on. But two sports stood out the most - basketball and volleyball; both sports played by his parents. Once he started walking unassisted at age 2 ½, he always had a ball in his hands and on game days would stand in front of the tv with a ball on his hip watching with excitement. He enjoys spending time outdoors, playing with his younger brother and of course, watching sports because in Cam’s world, ball is life. Cameron continues to have daily seizures, is non-verbal and 100% dependent on assistance with all daily living activities.
All of us have times of stress, loss, failure or trauma in our lives. How we respond to these events has a big impact on our wellbeing. We often cannot choose what happens to us, but we can choose how we react to what happens. In practice it’s not always easy, but one of the most exciting findings is that resilience, like many other life skills, can be learned. As a family, we continue to have positive emotions – like joy, gratitude, contentment, inspiration and pride – and we don’t just feel good when we experience them. They also help us perform better, broaden our perception, and increase our resilience. So although we need to be realistic about life’s ups and downs, it helps to focus on the good aspects of any situation.
Lance Aquino Ware
"Life After Prematurity Lung Disease"
Lance Aquino Ware was born on May 25, 2018, as a 29-week preemie. Lance was only 1 pound, 11 ounces. We will never forget 2014. When I was 18 weeks pregnant, my OB/GYN suggested a cervical cerclage considering a previous miscarriage of mine. My pregnancy was considered high-risk, so we monitored and checked in weekly with our obstetrician. Two weeks later, she realized Lance was underweight and put me on bed rest at home. We were nervous and shaken; however, we kept smiles on our faces and embraced positive energy around us. In April of 2014, Lance had no progression to his growth, so the pregnancy was diagnosed an intrauterine growth restriction (IUGR). This is a condition in which a baby doesn’t grow properly to a normal weight in utero.
When Lance arrived, he was immediately placed in an incubator and sent to the NICU. He was too small to be held; too small to even receive the first kiss from his mother. Lance spent five months in the NICU at Texas Children’s. When he was born, I felt like that moment was a never-ending story. The first time I laid my eyes on him, he looked helpless, sick and fragile. Our NICU stay was an emotional journey: two blood transfusions, many feeding tubes, and a broken femur. Lance started on a ventilator and then moved to a CPAP.
Lance’s father and I were filled with joy when we were able to bring our “tough guy” home on Oct. 13, 2014. He weighed 10 pounds, but still needed a small amount of oxygen and his feeding tube. By December 2014, Lance was breathing on his own and feeding by mouth. All we could say was: “Praise God for all the glory!” Of course, Lance had many follow-up visits and physical therapy sessions, and he was diagnosed with several developmental delays. Lance continued to overcome the odds, though. His father and I are now dedicated members of Texas Children’s Newborn Family Advisory Committee (NFAC). We want to give back to NICU parents who are in the shoes we filled, those who feel brokenhearted, hopeless and overwhelmed. We’re there to guide them with an open, genuine heart.
If you see Lance with your own eyes today, you’re witnessing a miracle. He enjoys interacting with his peers and playing at the park with his younger brother. Let’s not forget how much he loves playing music on his instruments. He knows the name for each one! Every day is drum practice at home with some help from his favorite YouTube channels. He is getting the hang of drumming to his favorite tunes!
Lance has a passion for playing instruments. Enjoys playing his drum set, pretend to play his band instruments, and enjoys watching HBCU bands on “YouTube.” Lance is a pre-kindergarten at Stovall EC/PK/K School. He already recognizes his colors and shapes, and he knows his numbers up to 50. Lance – you rock, buddy! The journey we faced at Texas Children’s was written in stone from the beginning, and we were chosen to be your parents. We’re so blessed to be your parents. We will continue to rock to your music, so let the beat go on.
"Life After Prematurity Lung Disease"
Lance Aquino Ware was born on May 25, 2018, as a 29-week preemie. Lance was only 1 pound, 11 ounces. We will never forget 2014. When I was 18 weeks pregnant, my OB/GYN suggested a cervical cerclage considering a previous miscarriage of mine. My pregnancy was considered high-risk, so we monitored and checked in weekly with our obstetrician. Two weeks later, she realized Lance was underweight and put me on bed rest at home. We were nervous and shaken; however, we kept smiles on our faces and embraced positive energy around us. In April of 2014, Lance had no progression to his growth, so the pregnancy was diagnosed an intrauterine growth restriction (IUGR). This is a condition in which a baby doesn’t grow properly to a normal weight in utero.
When Lance arrived, he was immediately placed in an incubator and sent to the NICU. He was too small to be held; too small to even receive the first kiss from his mother. Lance spent five months in the NICU at Texas Children’s. When he was born, I felt like that moment was a never-ending story. The first time I laid my eyes on him, he looked helpless, sick and fragile. Our NICU stay was an emotional journey: two blood transfusions, many feeding tubes, and a broken femur. Lance started on a ventilator and then moved to a CPAP.
Lance’s father and I were filled with joy when we were able to bring our “tough guy” home on Oct. 13, 2014. He weighed 10 pounds, but still needed a small amount of oxygen and his feeding tube. By December 2014, Lance was breathing on his own and feeding by mouth. All we could say was: “Praise God for all the glory!” Of course, Lance had many follow-up visits and physical therapy sessions, and he was diagnosed with several developmental delays. Lance continued to overcome the odds, though. His father and I are now dedicated members of Texas Children’s Newborn Family Advisory Committee (NFAC). We want to give back to NICU parents who are in the shoes we filled, those who feel brokenhearted, hopeless and overwhelmed. We’re there to guide them with an open, genuine heart.
If you see Lance with your own eyes today, you’re witnessing a miracle. He enjoys interacting with his peers and playing at the park with his younger brother. Let’s not forget how much he loves playing music on his instruments. He knows the name for each one! Every day is drum practice at home with some help from his favorite YouTube channels. He is getting the hang of drumming to his favorite tunes!
Lance has a passion for playing instruments. Enjoys playing his drum set, pretend to play his band instruments, and enjoys watching HBCU bands on “YouTube.” Lance is a pre-kindergarten at Stovall EC/PK/K School. He already recognizes his colors and shapes, and he knows his numbers up to 50. Lance – you rock, buddy! The journey we faced at Texas Children’s was written in stone from the beginning, and we were chosen to be your parents. We’re so blessed to be your parents. We will continue to rock to your music, so let the beat go on.
Nailiany Carrero
"Life After An Undiagnosed Illness"
On February 16, 2007, Nailiany was born. It wasn't until she was 10 months old before we discovered that Nailiany couldn't hear. The doctors thought it could be a small problem that they would solve in one day, but later in an MRI they realized that Naily's cochlea never developed. Nailiany is totally deaf. In the same exam they discovered that Nailiany had cerebral palsy. She was three years old when she had her first surgery. She received a cochlear implant so she could listen. Sadly, she couldn't use it, she never got used to the sound and the noises around her. A year later she was diagnosed with microcephaly and hypotonia, which is a condition of flaccid muscles and muscle mass deficiency. Nailiany had problems when she ate, was diagnosed with eating disorder and suffered for many years of severe pain after eating. It was not until she was 10 years old that doctors realized she had Barret's esophagus, the walls of Nailiany's esophagus has damaged cells, due that same reason she has to use medications for life. At age 12 on an x-ray test they realized that Nailiany had "Malrotation", her intestine was twisted, a problem she had since she was born. She had an emergency surgery 4 month ago. Nailiany does not currently have a diagnosis in general, even genetic doctors and neurologists have not found a name for the group of conditions that Nailiany has. Despite all her conditions all we do know for sure is that Nailiany really wants to live, play and laugh and that she is full of love and joy. We are more than blessed to have an angel from heaven living in our house.
"Life After An Undiagnosed Illness"
On February 16, 2007, Nailiany was born. It wasn't until she was 10 months old before we discovered that Nailiany couldn't hear. The doctors thought it could be a small problem that they would solve in one day, but later in an MRI they realized that Naily's cochlea never developed. Nailiany is totally deaf. In the same exam they discovered that Nailiany had cerebral palsy. She was three years old when she had her first surgery. She received a cochlear implant so she could listen. Sadly, she couldn't use it, she never got used to the sound and the noises around her. A year later she was diagnosed with microcephaly and hypotonia, which is a condition of flaccid muscles and muscle mass deficiency. Nailiany had problems when she ate, was diagnosed with eating disorder and suffered for many years of severe pain after eating. It was not until she was 10 years old that doctors realized she had Barret's esophagus, the walls of Nailiany's esophagus has damaged cells, due that same reason she has to use medications for life. At age 12 on an x-ray test they realized that Nailiany had "Malrotation", her intestine was twisted, a problem she had since she was born. She had an emergency surgery 4 month ago. Nailiany does not currently have a diagnosis in general, even genetic doctors and neurologists have not found a name for the group of conditions that Nailiany has. Despite all her conditions all we do know for sure is that Nailiany really wants to live, play and laugh and that she is full of love and joy. We are more than blessed to have an angel from heaven living in our house.
Brandon Faulk
"Life After Autism"
Brandon is a vibrant and multi-talented 16-year-old whose unique journey has inspired everyone around him. Diagnosed with autism at the age of 3, Brandon has overcome many challenges with grace, determination, and an infectious sense of humor. Though he has a speech impairment, his ability to communicate joy and express himself through his passions is extraordinary.
Brandon has a twin brother, Jonathan, and while they are medically identical, their personalities couldn’t be more different. For instance, Jonathan’s boundless energy makes it nearly impossible for him to sit still for long periods, while Brandon exudes calmness and focus when pursuing his passions.
One of the remarkable aspects of Brandon’s journey is his progress with sensory sensitivities to food. Through consistency and gentle encouragement, he has expanded his palate and now enjoys a wide variety of foods that he once wouldn’t try. His current favorite? Tacos! He’s also a big fan of grapes, which have become his favorite fruit.
Brandon’s talents and achievements extend far beyond the dining table. He is a proud participant in integrated athletics, where he has won numerous trophies for his dedication and skill. His teacher often sings his praises, highlighting his excellent school performance and exemplary behavior.
Brandon’s love for music shines brightly in his life. Whether he’s horseback riding, playing the drums, singing his favorite tunes, or mastering the keyboard, his creativity knows no bounds. Soon, he will be adding guitar lessons to his repertoire. This year marks another milestone: Brandon’s very first talent show! Thanks to the organization Love Has No Disability, he has been given an opportunity to step into the spotlight and let his light shine.
Brandon’s story is one of courage, creativity, and boundless potential. He reminds everyone that life is not about waiting for the storm to pass but learning to dance in the rain – a philosophy he lives out daily. 💙💙🧩
"Life After Autism"
Brandon is a vibrant and multi-talented 16-year-old whose unique journey has inspired everyone around him. Diagnosed with autism at the age of 3, Brandon has overcome many challenges with grace, determination, and an infectious sense of humor. Though he has a speech impairment, his ability to communicate joy and express himself through his passions is extraordinary.
Brandon has a twin brother, Jonathan, and while they are medically identical, their personalities couldn’t be more different. For instance, Jonathan’s boundless energy makes it nearly impossible for him to sit still for long periods, while Brandon exudes calmness and focus when pursuing his passions.
One of the remarkable aspects of Brandon’s journey is his progress with sensory sensitivities to food. Through consistency and gentle encouragement, he has expanded his palate and now enjoys a wide variety of foods that he once wouldn’t try. His current favorite? Tacos! He’s also a big fan of grapes, which have become his favorite fruit.
Brandon’s talents and achievements extend far beyond the dining table. He is a proud participant in integrated athletics, where he has won numerous trophies for his dedication and skill. His teacher often sings his praises, highlighting his excellent school performance and exemplary behavior.
Brandon’s love for music shines brightly in his life. Whether he’s horseback riding, playing the drums, singing his favorite tunes, or mastering the keyboard, his creativity knows no bounds. Soon, he will be adding guitar lessons to his repertoire. This year marks another milestone: Brandon’s very first talent show! Thanks to the organization Love Has No Disability, he has been given an opportunity to step into the spotlight and let his light shine.
Brandon’s story is one of courage, creativity, and boundless potential. He reminds everyone that life is not about waiting for the storm to pass but learning to dance in the rain – a philosophy he lives out daily. 💙💙🧩
Makenzy Ferrier
"Life After Hypothalamic Hamartoma"
On July 28th, 2006, Makenzy Ferrier came into the world. She was born full term and expected to be a typical child. At three months, her doctor’s noticed something wasn’t right. Her muscles were not developing at a normal rate. Makenzy began physical therapy at 4 months old, with a diagnosis of poor muscle development. As time went on, we noticed Makenzy’s condition wasn’t improving so an MRI of her brain was suggested. The MRI showed extra grey matter, but it was not considered to be anything because it wasn’t affecting anything. Through blood and other testing, no doctor could tell us why she wasn’t developing as she should. She was diagnosed with developmental delay. When Makenzy turned 3 years old, she finally began to walk. Once she started walking, she began to have life threatening seizures. This then gave her a diagnosis of epilepsy. The grey matter was later diagnosed as a hypothalamic hamartoma, which is a tumor-like formation on the hypothalamus, the area at the base of the brain that controls the production and release of hormones by the pituitary gland. Once this was discovered,it explained all of her diagnosis of autism, encephalopathy, hypotonia, precocious puberty, intellectual delay, mixed receptive-expressive language and others. She was the third in the country to have an ablation surgery of her brain tumor. This means they burned the tumor. She also has a deformity in her legs, which we are in the process of correcting. Makenzy had surgery in May of 2019 on her entire left leg and will have the right leg done next May. Through all of this, Makenzy loves to smile, she enjoys playing on her iPad, taking people’s hats and singing. She has joined a disabiled cheer team and looking forward to performing in tournaments. Makenzy has a sweet demeanor through all of her labels. She is a wonderful blessing and beautiful creation of God
"Life After Hypothalamic Hamartoma"
On July 28th, 2006, Makenzy Ferrier came into the world. She was born full term and expected to be a typical child. At three months, her doctor’s noticed something wasn’t right. Her muscles were not developing at a normal rate. Makenzy began physical therapy at 4 months old, with a diagnosis of poor muscle development. As time went on, we noticed Makenzy’s condition wasn’t improving so an MRI of her brain was suggested. The MRI showed extra grey matter, but it was not considered to be anything because it wasn’t affecting anything. Through blood and other testing, no doctor could tell us why she wasn’t developing as she should. She was diagnosed with developmental delay. When Makenzy turned 3 years old, she finally began to walk. Once she started walking, she began to have life threatening seizures. This then gave her a diagnosis of epilepsy. The grey matter was later diagnosed as a hypothalamic hamartoma, which is a tumor-like formation on the hypothalamus, the area at the base of the brain that controls the production and release of hormones by the pituitary gland. Once this was discovered,it explained all of her diagnosis of autism, encephalopathy, hypotonia, precocious puberty, intellectual delay, mixed receptive-expressive language and others. She was the third in the country to have an ablation surgery of her brain tumor. This means they burned the tumor. She also has a deformity in her legs, which we are in the process of correcting. Makenzy had surgery in May of 2019 on her entire left leg and will have the right leg done next May. Through all of this, Makenzy loves to smile, she enjoys playing on her iPad, taking people’s hats and singing. She has joined a disabiled cheer team and looking forward to performing in tournaments. Makenzy has a sweet demeanor through all of her labels. She is a wonderful blessing and beautiful creation of God
Dontel Jones "Life After Traumatic Brain Injury"
Dontel was born 8/27/2006. At the time of birth he was a healthy baby. Going into Dontel’s junior year of high school tragedy stuck. On August 15, 2022 Dontel was in a really bad car accident on his way to play basketball with friends that resulted in a Traumatic Brain Injury, or TBI, to his left brain. Upon impact, he fractured his left temporal and hit his head a few more times, causing his brain to begin to bleed. He was immediately rushed into surgery where they removed a large part of his left skull and any damaged tissue. Since then, Dontel has had multiple surgeries and procedures to reduce the swelling on his brain and to help his body learn to function on its own again and has spent three months in the ICU, one month in a rehabilitation hospital. Although he is now home, Dontel is still currently 100% dependent and requires around the clock care.
Because of the extent of his injuries, Dontel is still non-verbal and cannot walk. He requires multiple therapies weekly to get him back on track. This accident has been life-changing for not only Dontel but our entire family. He is only 16 years old. He still has upcoming surgeries and medical expenses arising as this is going to be/has been already a long road to recovery.
To date, Dontel has attended his senior prom and graduated high school. He can sit edge of bed and is very responsive. He is the typical teenager and it shows when he does not want to be bothered. These past few weeks, he has started smiling more and more. He continues to make progress daily. #dontelstrong🖤
Dontel was born 8/27/2006. At the time of birth he was a healthy baby. Going into Dontel’s junior year of high school tragedy stuck. On August 15, 2022 Dontel was in a really bad car accident on his way to play basketball with friends that resulted in a Traumatic Brain Injury, or TBI, to his left brain. Upon impact, he fractured his left temporal and hit his head a few more times, causing his brain to begin to bleed. He was immediately rushed into surgery where they removed a large part of his left skull and any damaged tissue. Since then, Dontel has had multiple surgeries and procedures to reduce the swelling on his brain and to help his body learn to function on its own again and has spent three months in the ICU, one month in a rehabilitation hospital. Although he is now home, Dontel is still currently 100% dependent and requires around the clock care.
Because of the extent of his injuries, Dontel is still non-verbal and cannot walk. He requires multiple therapies weekly to get him back on track. This accident has been life-changing for not only Dontel but our entire family. He is only 16 years old. He still has upcoming surgeries and medical expenses arising as this is going to be/has been already a long road to recovery.
To date, Dontel has attended his senior prom and graduated high school. He can sit edge of bed and is very responsive. He is the typical teenager and it shows when he does not want to be bothered. These past few weeks, he has started smiling more and more. He continues to make progress daily. #dontelstrong🖤
Jaylon Kimble
"Life After Autism"
My son Jaylon Kimble is so unique and amazing on a daily basis he is a computer wiz , dancing machine,and he loves his music from rap to classical and he even like opera and a little country as well. He has overcome so many challenges and obstacles but still manages to keep striving. When Jaylon was diagnosed at 1 I was so scared but I knew I needed to get some help for my son in order for him to move forward in this world. Of course our journey has not been easy at all!! But it’s our journey and i wouldn’t change a thing. With Jaylon being diagnosed at a early age it has not been easy we have dealt with not being able to hold conversations not being able to live on his own and not being able to work or have his on independence like everyone else in this world. But with all of that we still remain positive and optimistic on everything we do or try different. I am so ao proud of my son because with all the things we deal with like family, friends and just the world in general can be very difficult and irritating but through all of it I am so so grateful and thankful for god choosing me to be Jaylons mom. Because my son has taught me so much that I could ever imagine so I want to thank my son Jaylon and let’s never give up and always ROCK AUTISM!! 💙
"Life After Autism"
My son Jaylon Kimble is so unique and amazing on a daily basis he is a computer wiz , dancing machine,and he loves his music from rap to classical and he even like opera and a little country as well. He has overcome so many challenges and obstacles but still manages to keep striving. When Jaylon was diagnosed at 1 I was so scared but I knew I needed to get some help for my son in order for him to move forward in this world. Of course our journey has not been easy at all!! But it’s our journey and i wouldn’t change a thing. With Jaylon being diagnosed at a early age it has not been easy we have dealt with not being able to hold conversations not being able to live on his own and not being able to work or have his on independence like everyone else in this world. But with all of that we still remain positive and optimistic on everything we do or try different. I am so ao proud of my son because with all the things we deal with like family, friends and just the world in general can be very difficult and irritating but through all of it I am so so grateful and thankful for god choosing me to be Jaylons mom. Because my son has taught me so much that I could ever imagine so I want to thank my son Jaylon and let’s never give up and always ROCK AUTISM!! 💙
D’Neeko Thompson
“Life After Chromosome 13 Abnormality”
Hello!
My name is D’Neeko Thompson (nickname: Neeko). I blessed the world with my presence on July 23, 2003. I was born with a chromosome 13 abnormality. Which means the 13th chromosome was deleted/missing. This deletion causes developmental delay, intellectual disability, low birth weight, & other physical abnormalities.
Despite the many surgeries and procedures I have endured, I still have a reason to SMILE 😀. I have my family that gives me love, hope, and encouragement. I kinda have them wrapped around my finger but don’t tell them I said that!! LOL!! With my family’s unlimited support it has allowed me to be independently mobile and involved in everyday life. Watching movies on my iPad is one of many things I enjoy. So please don’t FaceTime me interrupting my movie. LOL!!
Did I hear someone say animals??? I absolutely love animals!! ALL ANIMALS!! Lemurs, fish, whale, sharks, penguins, you name it I love them! Visiting the aquarium or zoo daily, yes I said daily, would be pure joy. But my mama not having it (side eye). I have a passion for music which I get naturally from my Pops. What’s music without a little shimmy?? Don’t let the wheelchair fool you, I can get jiggy with it…😀
On a serious note, I’m such an inspiration to the world, LOL…my parents started a non-profit called U’Neek & Gifted. Let me say it again U’Neek & Gifted. Emphasis on the Neek!!! (brush shoulders off)… LOL!! The organization is dedicated to providing disability resources, advocacy, and support to those living with special needs and unique circumstances. We strive to impact the community emotionally, mentally, and socially. You can learn more about us at uneekandgifted.org
Move over because we will be having this seat at the table where we belong!!
Thank you Jacah and Love Has No Disability for the invitation!!!
“Life After Chromosome 13 Abnormality”
Hello!
My name is D’Neeko Thompson (nickname: Neeko). I blessed the world with my presence on July 23, 2003. I was born with a chromosome 13 abnormality. Which means the 13th chromosome was deleted/missing. This deletion causes developmental delay, intellectual disability, low birth weight, & other physical abnormalities.
Despite the many surgeries and procedures I have endured, I still have a reason to SMILE 😀. I have my family that gives me love, hope, and encouragement. I kinda have them wrapped around my finger but don’t tell them I said that!! LOL!! With my family’s unlimited support it has allowed me to be independently mobile and involved in everyday life. Watching movies on my iPad is one of many things I enjoy. So please don’t FaceTime me interrupting my movie. LOL!!
Did I hear someone say animals??? I absolutely love animals!! ALL ANIMALS!! Lemurs, fish, whale, sharks, penguins, you name it I love them! Visiting the aquarium or zoo daily, yes I said daily, would be pure joy. But my mama not having it (side eye). I have a passion for music which I get naturally from my Pops. What’s music without a little shimmy?? Don’t let the wheelchair fool you, I can get jiggy with it…😀
On a serious note, I’m such an inspiration to the world, LOL…my parents started a non-profit called U’Neek & Gifted. Let me say it again U’Neek & Gifted. Emphasis on the Neek!!! (brush shoulders off)… LOL!! The organization is dedicated to providing disability resources, advocacy, and support to those living with special needs and unique circumstances. We strive to impact the community emotionally, mentally, and socially. You can learn more about us at uneekandgifted.org
Move over because we will be having this seat at the table where we belong!!
Thank you Jacah and Love Has No Disability for the invitation!!!
Alexandra Vincent
“Life After Down Syndrome”
Alexandra is a beautiful 21 year old young lady. She was prenatally diagnosed with Translocation Trisomy 21 and Tetralogy of Fallot (congenital heart Defect). Consequently, she has been diagnosed with numerous medical conditions including: Congenital Cataracts, Nystagmus, Strabismus, legally blind, mild auditory impairment, silent aspiration, GI reflux, Hypothyroidism, Type 1 Diabetes, Reactive Airway Disease & Sleep Apnea.
Alexandra has been hospitalized numerous times. She has endured many surgeries and procedures including heart repair surgery, tonsils & adenoids removed, lingual tonsils removed, eye and ear surgeries.
She has undergone numerous therapies during her lifetime including physical, occupational, speech, hippotherapy (horseback riding), and vitalstim (electrical stimulation of swallowing muscles) therapy.
She is a La Porte 2021 high school graduate and currently attends the 18 plus Bridges program in LPISD. Alexandra has Down Syndrome and is medically complex. She lives life to the fullest as a lifetime Girl Scout. Was inducted into Night of Superstars in 2018 and Texas Miss Amazing Teen. She participates in Special Olympics & Challenger Sports, enjoys runs with her Mom in the Ainsley Angels Running Group. She is an active member of Galveston Houston Families Exploring Down Syndrome. In addition, she will be participating, proudly in the Marine Marathon in Washington DC this year with her Ainsley Angels running group in October.
Alexandra is a valued member of her family and her community. She is the bravest person I know and I am honored to be her mother and experience life beside her.
“Life After Down Syndrome”
Alexandra is a beautiful 21 year old young lady. She was prenatally diagnosed with Translocation Trisomy 21 and Tetralogy of Fallot (congenital heart Defect). Consequently, she has been diagnosed with numerous medical conditions including: Congenital Cataracts, Nystagmus, Strabismus, legally blind, mild auditory impairment, silent aspiration, GI reflux, Hypothyroidism, Type 1 Diabetes, Reactive Airway Disease & Sleep Apnea.
Alexandra has been hospitalized numerous times. She has endured many surgeries and procedures including heart repair surgery, tonsils & adenoids removed, lingual tonsils removed, eye and ear surgeries.
She has undergone numerous therapies during her lifetime including physical, occupational, speech, hippotherapy (horseback riding), and vitalstim (electrical stimulation of swallowing muscles) therapy.
She is a La Porte 2021 high school graduate and currently attends the 18 plus Bridges program in LPISD. Alexandra has Down Syndrome and is medically complex. She lives life to the fullest as a lifetime Girl Scout. Was inducted into Night of Superstars in 2018 and Texas Miss Amazing Teen. She participates in Special Olympics & Challenger Sports, enjoys runs with her Mom in the Ainsley Angels Running Group. She is an active member of Galveston Houston Families Exploring Down Syndrome. In addition, she will be participating, proudly in the Marine Marathon in Washington DC this year with her Ainsley Angels running group in October.
Alexandra is a valued member of her family and her community. She is the bravest person I know and I am honored to be her mother and experience life beside her.
Carlos Carr Jr
"Life After ASD"
Carlos Carr Jr. better known as C.J. was born has been an exciting, rewarding journey for our entire village. CJ is a 19 year old graduate of Shepherd High school. CJ was born with Autism Spectrum Disorder (ASD). This condition is a developmental disorder of variable severity that is characterized by difficulty in social interaction and communication by restricted or repetitive patterns of thought and behavior. This condition is a serious developmental disorder that impairs the ability to communicate and interact.
At birth doctor’s said CJ would never walk, talk and several other discouraging diagnoses. However, being the blessed child that he is; CJ is Conquering and Overcoming Autism! CJ stands over 6 feet tall and he walks, talks and makes sense of so many things. CJ loves music! He plays piano by ear, and has a phenomenal memory. His favorite artist is Cardi B! When Cardi B’s music comes on the radio his face lights up with a huge smile. This moment to witness him light up every time he hears her is Priceless. CJ also loves Box Fans, Bowls and Microwaves. He loves to tap the side of the bowls to hear the noise that the bowl makes. CJ has over 20 different bowls from all over the country. Several years ago I posted a post on Facebook of him picking out bowls, and people from all over started sending him bowls. Last but not least CJ loves fashion. He loves to get dressed up nice and top his outfit off with a nice pair of sunglasses. That’s my CJ fly guy & that is what #AutismSauce is! CJ also have a Foundation, Called CJ Autism Foundation, that bring so many Uniquely able People together while Giving back to the community! Go C.J that's My C.J!
"Life After ASD"
Carlos Carr Jr. better known as C.J. was born has been an exciting, rewarding journey for our entire village. CJ is a 19 year old graduate of Shepherd High school. CJ was born with Autism Spectrum Disorder (ASD). This condition is a developmental disorder of variable severity that is characterized by difficulty in social interaction and communication by restricted or repetitive patterns of thought and behavior. This condition is a serious developmental disorder that impairs the ability to communicate and interact.
At birth doctor’s said CJ would never walk, talk and several other discouraging diagnoses. However, being the blessed child that he is; CJ is Conquering and Overcoming Autism! CJ stands over 6 feet tall and he walks, talks and makes sense of so many things. CJ loves music! He plays piano by ear, and has a phenomenal memory. His favorite artist is Cardi B! When Cardi B’s music comes on the radio his face lights up with a huge smile. This moment to witness him light up every time he hears her is Priceless. CJ also loves Box Fans, Bowls and Microwaves. He loves to tap the side of the bowls to hear the noise that the bowl makes. CJ has over 20 different bowls from all over the country. Several years ago I posted a post on Facebook of him picking out bowls, and people from all over started sending him bowls. Last but not least CJ loves fashion. He loves to get dressed up nice and top his outfit off with a nice pair of sunglasses. That’s my CJ fly guy & that is what #AutismSauce is! CJ also have a Foundation, Called CJ Autism Foundation, that bring so many Uniquely able People together while Giving back to the community! Go C.J that's My C.J!